Those Living with HIV/AIDS Often Become Caregivers to Others

ChildFund International programs provide care and support to thousands of parents and children affected by HIV/AIDS. Our commemoration of World AIDS Day continues with an interview with Sseruwaji Nuru, a home-based care volunteer who is HIV-positive and working with others living with HIV/AIDS in the Kampala area. Sheila Birungi, a ChildFund Uganda project affiliate, conducted the interview.

How long have you been working with HIV/AIDS patients?
Since 2002 when ChildFund trained us as volunteers in home-based care (HBC).

How did you come to be in this field work?
We were selected by team of staff as the people to train in HBC, and I accepted.

What are your principal job responsibilities?
The major one is to keep confidentiality for our clients and also to [treat] all the clients as an individual. They are not the same and they should be treated in different ways. Recordkeeping is also another thing to keep in control because we are handling a lot of information, especially on adherence to ARVs (anti-retroviral drugs). And we, therefore, have to stress the times when the drugs are taken and the progress.

Where do you work?
I see the patients at the home and make sure that they get the drugs they have to receive.

Home-based caregiver Sseruwaji Nuru (in black T-shirt and hat) discusses the drug-adherence monitoring form.

What is your case load?
I have up to 28 clients; however, in every month the numbers have to change because of the different migrations out of most of the members. On the days I work, I see about four patients every day, especially if I do not have a lot of my own work. On a weekly basis, I can have 8 to 10 of them.

What is your key area in working with someone with HIV/AIDS?
Disclosure first. Stigma reduction. Nutrition and adherence to ARVs.

What are the day-to-day lives like for the patients with HIV/AIDS?
They have time for joy and they can be sorrowful at times. The work they do depends on how well they are, and they can sometimes be rude to the family member. The time without good meals is very bad, especially because of the drugs they take. Sometimes the day can be bad if they have demands for money, for example, house rent and other domestic needs for their families and also school fees.

What progress have you seen with HIV/AIDS prevention and treatment since you’ve been working in this area?
People are no longer stigmatized, and they are positively living with it. Many people are now able to live longer and with healthy families. Also, the installation of hope in whatever they are doing.

Are people better educated in prevention than before?
Yes, and very much better lives realized.

Comments are closed.